If you’ve been following along with my posts, you’ll know that even after being on an extreme fructose malabsorption diet with about 15 foods I could eat, I’ve still been having a lot of problems.
My dietician suggested I look into Mediator Release Testing, which tests you for sensitivities to 150 different foods and chemicals. Why hadn’t anyone suggested this to me before?!
Getting the test done was a pain. I needed a doctor’s orders to be able to have it done and so I called the doctor who diagnosed me with FM and left a message, but the doctor who called me back was the one I had last seen at that clinic who was terrible. He said he didn’t want to order the test for me because it “wasn’t scientifically proven” (which, it is), and he didn’t want to “be responsible for this, that, and the other thing.” Yes, he actually said that. I was going to ask what “this, that, and the other thing” might be when all that was involved was getting my blood drawn, but I knew it was pointless.
Feeling quite dejected, I thought maybe the doctor I had seen at the Mayo clinic would be willing to help me, but he also declined to order the test for me. I asked: what should I do from here? How do I get help? And all he had to offer was the last medication he had suggested for me initially that I already said I didn’t want to take. Asshole.
Amanda had a plan for me, though. She set me up with a dietician in St. Paul who said they did test. All I had to do was ask a general practitioner in their network for a referral to see her and I was good to go. From there it was easy!
The actual testing was a breeze. They drew 4 small tubes of blood and I didn’t even have to fast! Waiting for the results was tough, even though it only takes 4-10 days to get them back. Here is a copy of mine: My Results!
I thought making sense of these would be simple, but these things never are. Some things are obvious, like green: good; yellow: not so good; and red: highly reactive. But other things are confusing. For example, fructose ended up being in the not so good category, but honey, which is quite high in fructose, was in the green section. It will all take a while to puzzle out, but at least for now I have some kind of guidance.
The first two pages are my reactions to certain foods (they explain on their website how they figure this all out), pages 3-8 are the dietary plan they’ve worked up for me, and page 9 is a form I screwed up on and should be ignored.
I’m approaching these results cautiously. I mean, wheat? Garlic? Tomato? It seems way too good to be true. Amanda saw a few things she thought might have been screwing me up: rice, which I eat all day every day, and potatoes. I know white potatoes are low on the reactive list, but the chemical solanine, which is found in high levels in potatoes, is in the yellow for me.
I’ll be starting off slowly on this new diet. The test confirmed that I have fructose malabsorption, but perhaps it’s not quite as dire as I previously thought.
The downside to this test is that it’s not (yet) covered by insurance and costs $300 (they do have options for testing fewer foods for reduced costs). The upside? It could save us years of pain and answer a lot of questions we have about our overall health. And I don’t think I have to convince you that that’s worth every penny.